Wednesday, May 2, 2012

Ryan's 1st Hospital Visit

Apparently Ryan has decided he's gonna continue to keep us on our toes. His latest way to do that was with a 2 day stay in Cardon Children's Hospital ICU. Last Wed night we went to visit Klint's sister Vanessa who had just moved here (Yay). About 7pm we piled in the car to head home & just as we pulled out of the driveway Ryan suddenly started screaming his head off. It sounded off, so Klint stopped & got out to see what was going on. He was screaming so hard he was turning red, & purple, then he suddenly stopped crying turned his head to the side, his eyes rolled back, & he wouldn't respond. We tried getting him to respond but it took about 3 mins before he started responding. It was a pretty scary 3 mins & even Jameson & Alex were concerned. (Jameson started to cry cause he wanted to know "what is wrong with brother.") Klint & I had a bad feeling, so we decided we'd better head over to the ER to make sure he was ok. We called my sister Jen & she met us at home to take care of the older boys so Klint & I could take Ryan to the ER. As soon as we got to the ER they got us right back & hooked him up to monitors. They were thinking it was either seizures or a congenital heart defect & they started blood work & tests right away. We called my brother Scott who lives close to Cardon's & he came to the hospital & helped Klint give Ryan a blessing. By that time everyone was zeroing in on a substantial heart murmur Ryan has & they were pretty sure it was a heart defect that was causing this. Heart issues are something that runs in my family and I have always been very worried that one of my kids would have one so I was pretty freaked out at that point. When everyone stopped, took a step back & watched Klint & Scott give Ryan a blessing  you could feel the Spirit so strongly. Everyone in the room was suddenly quiet & calm. I don't remember all that was said in the blessing, but at one point Klint paused in the blessing, got really emotional & then blessed Ryan "to be made whole." As soon as he said those words I immediately was calm & knew for sure that it was going to be ok. As they concluded the blessing I looked up to see everyone in the room, nurses & all, wiping tears from their eyes. It was an amazing moment & I truly believe we witnessed the healing power of the Priesthood & that our sweet little Ryan had been very litterally healed. While things were still scary, (they were now saying we would probably be spending a day or two in the hospital) I knew without a doubt that it would be ok and I never had another fearful moment for the rest of the time were were in the hospital. 
Ryan was pretty good throughout the tests, but every time they did something new (draw blood, IV, etc) he would have another episode so everyone got to see them. They said they'd never seen anything like it. It just happened when he got mad. They ended up admitting him for what they were then pretty sure was a heart defect & sending him up to the ICU so they could monitor him closely. We spent the next 2 days there having tests run & being monitored. He had blood work, an EKG, an Echocardiogram, an EEG & an MRI of his brain. Thankfully all the tests were came back normal. After eliminating all the "big stuff" they decided that it was "breath holding spells" which the neurologist said was VERY rare. He said in his career he had only seen 1 other newborn who had them. Kids don't usually have them until 18mo-2yrs & they usually grow out of them by about 3 or 4yrs old. He said the good news was it wasn't hurting him & he never really stops breathing longer than one could hold their breath, so he was fine, but the bad news was "he's gonna drive you crazy for the next 3-4 years". I told him I would take it over seizures or heart defect. While we were in the hospital he was having 6-7 episodes a day, but now that we're home it's not as often, & it's still always when he gets mad. He was such a cute little trooper so I got a few pictures of him having the tests. 
 Having an EKG in the ER
 With his IV or as we called it his "transformer arm"
 Here he is snoozing away hooked up to tons of monitors. 
 Such a cutie.
 More hooked up to monitors
 Here he is having his EEG to check for seizures.
We are so grateful everything came back clear even though it was an eventful couple of days.

7 comments:

LBJ said...

So glad that this turned out to be something that will just "drive you crazy" and not something life changing for little Ryan. It certainly deserves a record in his history. Glad you wrote about it.
He certainly looks adorable, now that we're not worried to death about him.So grateful for good medical care and family support.

Shellee said...

I'm grateful that he was okay! I know how scary it can be to have all those tests and still be inconclusive. Who were your neuro's? Who was the floor Dr? I think we've met all the Drs there!

CASSIE said...

Silly little guy! I knew it "ran in our family"-- but not that young!! Jada was my earliest at 10 months (but they've all had multiple episodes though)...freaked me out!!And I was the worst growing up...sure I gave mom a few grey hairs!! :) Blame it on Klint's genes!! SOOO glad everything is okay! Can't wait to meet this cute little guy!!

Amy said...

So scary, I'm so glad everything turned out ok!

Karen said...

that is so scary I am glad everything is okay, he is so cute.

The Webbs said...

That is so scary! I'm really glad that everything turned out okay. He is so adorable!

Annie said...

So glad everything is ok! It is not fun when our sweet little ones are sick or have to go to the hospital!